Average delay in diagnosis when symptoms begin at ages 9–19. Italian multi-center study, 10 medical centers. See the research
The Endo Diary is dedicated to empowering teens and their families with the knowledge, support, and community they need to navigate endometriosis.
The Endo Diary is dedicated to empowering teens and their families with the knowledge, support, and community they need to navigate endometriosis.
Our mission is to provide clear, relatable information, encourage early awareness, and create a safe space where young people can share their stories and find connection. We believe every teen deserves to be heard, understood, and supported as they seek answers and care for their health.
At The Endo Diary, no one faces endometriosis alone. We’re here to help every step of the way.
Short pages written for teens. Read them in order, or jump to what you need.
The condition, who it affects and the symptoms to know.
How endometriosis pain differs from common period cramps.
What doctors ask, what imaging can show, and what laparoscopy is.
Peritoneal, ovarian and deep infiltrative endometriosis.
Why getting answers can take years, and what the research found.
Hormonal options, GnRH medications, surgery and hysterectomy.
Heat, TENS units, soothing oils and daily routines that can ease discomfort.
Hi, my name is Koko VanDernoot, and I am a senior at Beaver Country Day School. Over the past two summers, I have interned at Boston Children’s Hospital under Dr. Elizabeth Boskey, focusing on endometriosis and pediatric gynecology.
Diagnosed with endometriosis
Summers interning at Boston Children’s Hospital
Patient records analyzed on school accommodations
I created The Endo Diary to share my story, amplify others’, and make it easier for teens to navigate their own endometriosis journeys. My goal is to help others feel less alone, find trustworthy resources, and feel empowered to advocate for their health.